About
About us
Established in June 2015 Cystic Fibrosis Care is a charity formed and run by professional fundraisers who are parents of children who have Cystic Fibrosis. The charity provides essential services and equipment, practical help and support to children and adults, their families and Specialist Care Centres.
Mission
Our mission is to help people with Cystic Fibrosis. To support high quality CF care, promote public awareness of Cystic Fibrosis, and raise and allocate funds for these purposes.
Vision
A world where those with Cystic Fibrosis can access the care they need and CF is no longer a progressive life-shortening disease.
Values
Cystic Fibrosis Care is committed to, and encourages the fostering of the following four values:
- Excellence
- Caring
- Accountability
- Teamwork
Strategic Directions
Our strategic directions provide a roadmap for Cystic Fibrosis Care as we continue to deliver on our mission and in achieving our vision, and form the basis of our corporate goals, objectives and priorities. Together, we have our sights on providing and enabling much needed care support.
Our strategic directions are:
1. Build and achieve sustainable revenue growth in order to invest in care, advocacy and essential equipment for the individual with CF and their Specialist Treatment Centre
2. Support and enable Emotional Support and Counselling through critical times of stress and difficulty
3. Support excellence in CF care in order to ensure patients receive improved quality of care
4. Align our organisational resources in order to deliver on our mission
Whether you are major donor or grass roots volunteer the question remains the same: How does my support make a difference? Cystic Fibrosis Care will work hard to ensure donations and funds raised will be used to improve the lives of those with CF and look to build a strong organisation for the future.
Our Trustees
Christy York
Chairman of the Board of Trustees for Cystic Fibrosis Care
CF Parent
Catherine Sunley
Financial Director of Sherwoods Garages North East and JP
Martyn Rose
Chairman of several UK companies
Chairman of Floreat Education Academies Trust
Sasha York
Key Fundraiser